Monday, January 20, 2014

Rant time!

Hey everyone!


Its me, I am feeling down in the dumps today, and got into an argument with two of my friends based on how I am handling things, so I feel the need to rant a little. So here goes. Just going to flat out say something I don't say often: I just wish I wasn't different. So it all started when I was randomly thinking about people being judgemental.

I was feeling the need to rant about people staring and how it feels.And, apparently my friends did not like the way I handle it and both kinda attacked me for it. They both told me I need to be nice to everyone (I used to, gave up on that when people started walking all over me) I realized I can't be nice to everyone because there was a rule presented to me when I was young and I wholeheartedly still believe in it "Treat Others the Way you want to be treated" So I am nice to people if they are nice to me, I am mean to people who are mean to me, that what that rule means and I intend to follow it. I wish people would consider what I have been through before telling me what to do. Now I shall leave you with a song that makes me smile everytime I hear it

There's some things that I regret,
Some words I wish had gone unsaid,
Some starts,
That had some bitter endings,
Been some bad times I've been through,
Damage I cannot undo,
Some things,
I wish I could do all all over again,
But it don't really matter,
Life gets that much harder,
It makes you that much stronger,
Oh, some pages turned,
Some bridges burned,
But there were,
Lessons learned.


And every tear that had to fall from my eyes,
Everyday I wondered how I'd get through the night,
Every change, life has thrown me,
I'm thankful, for every break in my heart,
I'm grateful, for every scar,
Some pages turned,
Some bridges burned,
But there were lessons learned.

There's mistakes that I have made,
Some chances I just threw away,
Some roads,
I never should've taken,
Been some signs I didn't see,
Hearts that I hurt needlessly,
Some wounds,
That I wish I could have one more chance to mend,
But it don't make no difference,
The past can't be rewritten,
You get the life you're given,
Oh, some pages turned,
Some bridges burned,
But there were,
Lessons learned.


And every tear that had to fall from my eyes,
Everyday I wondered how I'd get through the night,
Every change, life has thrown me,
I'm thankful, for every break in my heart,
I'm grateful, for every scar,
Some pages turned,
Some bridges burned,
But there were lessons learned.

And all the things that break you,
Are all the things that make you strong,
You can't change the past,
Cause it's gone,
And you just gotta move on,
Because it's all,
Lessons learned.


And every tear that had to fall from my eyes,
Everyday I wondered how I'd get through the night,
Every change, life has thrown me,
I'm thankful, for every break in my heart,
I'm grateful, for every scar,
Some pages turned,
Some bridges burned,
But there were lessons learned,
Oh, some pages turned,
Some bridges burned,
But there were lessons learned,
Lessons learned.

Monday, January 13, 2014

Why Ellen?

Hello everyone!


As I am incredibly busy and slowly becoming famous (Weird isn't it? I'm 16 and I am inspiring, want me to go on a shopping spree or do something your average 16 year old girl would do? Too bad, I like my books and brain too much) I find I need to separate time for myself and my blogging, at last my dreams of using my story to inspire and help others is coming true. I am one of 300 people with my disease in the world and I seem to be the one chosen to spread awareness. I am very blessed that I have been given this job, and I bet you won't find someone nearly as passionate as I am for the job. And if you are one of the people I inspire, I'm sorry, I can't be that good of an inspiration, there are others that would do a better job.

Now, recently I have been trying to get on the Ellen Degeneres Show, to get the awareness national, or even international! We have over 600 signatures as of 8:21, and no contact from the Ellen show. So, why Ellen? Well,  I have loved Ellen since I was 6 or 7 years old and I heard her as Dory the Fish, I since have adopted her motto for my everyday life "Just Keep Swimming".

Along with the petiton and Facebook page, I was in the local newspaper (You can read the article here: http://lancasteronline.com/article/local/933757_Manheim-Township-girl--born-with-Morquio-Syndrome--hopes-to-tell-her-story-on--The-Ellen-DeGeneres-Show-.htmlhttp://lancasteronline.com/article/local/933757_Manheim-Township-girl--born-with-Morquio-Syndrome--hopes-to-tell-her-story-on--The-Ellen-DeGeneres-Show-.html ) and today a letter to the editor came in that I personally would like to address. It reads: I read the article in the Sunday News (Dec. 22) about Sarah Van Orden and her quest to be a guest on "The Ellen DeGeneres Show."
Sarah truly seems to be an amazing teenager who's been given almost insurmountable odds in life and facing them with courage and optimism far beyond her years. Being in a wheelchair myself, I'm slightly aware of the hurdles to overcome, but certainly not on the level that Sarah faces in her daily life.
Toward the end of the article I read with tears about her difficulty with the one door at school and not being able to open it without help. I could not believe what I was reading when it stated that, on some days, she has to sit in the rain because other students walk right by her and don't help her. Any student who is guilty of this awful behavior should be ashamed.
Sarah's parents must be very proud of her and the way in which she's living her life. I'm sure her wonderful attitude takes an enormous amount of strength in facing each day in such a positive way. And I'm also sure she's very thankful for her best friend and supporter and her efforts to help make Sarah's dream come true.
Hopefully, with enough social media coverage, Ellen DeGeneres will become aware of this project and the arrangements will be made for Sarah and her parents to travel to Los Angeles for the big event. Being Ellen's guest would be an awesome happening for a very deserving young person. We will all be waiting with much anticipation for the announcement of the date the show will air.
Connie A. Kirchner

Well, first of all, Thank you Connie and second, my school is thinking that this is worse than it actually is so I thought I would mention that I LOVE school, its just the one door and people assuming I am mentally handicapped that I don't like about Township, a majority of the teachers are sweet and I have had very few problems with the staff but rather with the students, as they are just like all other teens. I have an aid who doesn't start when I first get to school, but I love her and can't even fathom life without her. Well, I have to go, relax a bit, I have an interview after school tomorrow for the school news! 

Just Keep Swimming, God Bless,

Sarah Van Orden