Wednesday, April 24, 2013

Amanda and Icky (Brandon)

Hi guys!

So on Sunday, I got to follow my sister and her fiance (Icky is his nickname, because my dad called him an Icky boy) for Engagement pictures, I only took a few so...
Beauty outside the arboretum 


The exact spot he proposed at, 4 months ago

Look at the way Amanda looks at him, true love

They're adorable

Arboretum 


Again

Cute!

Farmssssssss

I ship it.

All about me


  • Full Name: Sarah Anne (Not Sharing last name)
  • Birthday: June 6th 1997
  • Name Meaning -
  •    Sarah:  Princess, Hebrew 
Anne-  Gracious, Merciful
  • Nationality: American
  • Descended from:  I'm Dutch, Irish, German, British, apparently French somewhere
  • Hometown: Small Town In New Jersey
  • Age: 15, turning 16
  • TV Show(s): Glee; Pretty Little Liars; Once Upon a Time, Switched At Birth, DC Cupcakes, Four Weddings, MAD, Cake Boss
  • Movie(s): Titanic; Harry Potter; Anything Disney, Hunger Games, American Girl Doll Movies
  • Actor/Actress: ; Emma Watson; Daniel Radcliffe; Rupert Grint; Evanna Lynch; Helena Bonham Carter; Alan Rickman; Anyone from Harry Potter; Annasophia Robb and Lorraine Nicholson (Bethany Hamilton and Alana Blanchard) 
  • Music: Idina Menzel; Kristin Chenoweth; Pink; Adele; Britney Spears; Glee; Katy Perry; Lady Gaga; Jon Cozart; Gotye; Florence and The Machines; Starkid
  • Books:  Harry Potter; The Hunger Games; American Girl (Especially Samantha's); The Princess Diaries; Sisterhood of the Traveling Pants; Wizard Of Oz; The Bully Book; The Kingdom Keepers series
  • Hobbies:  listening to music; surfing the internet; traveling; visiting museums; shopping; watching TV/movies; collecting dolls; hanging out with friends
  • Mother: Ruth!
  • Father: Tom! 
  • Sibling(s): Amanda (21) and Tommy (23)
  • Pet(s): 2 Chocolate Labs , Java (she's 6) and Lena (14) and an American Short Hair Cat named Tigger(9)
  • Religious Beliefs? Catholic
  • Countries Lived In: United States
  • Languages Spoken: fluent in English; up to French 2
  • Email: not comfortable posting here for everyone to see

    Favorites!!
    name  I love the names, Aria, Charlotte, Kennedy and Liam. 
    number Either 7 or 13
    saying I love so many, but my favorite is probably;

    “No story lives unless someone wants to listen. The stories we love best do live in us forever. So whether you come back by page or by the big screen, Hogwarts will always be there to welcome you home.” - JK Rowling

    movie Ooo.... Probably... Harry Potter and the Chamber of Secrets! 
    song Edge of Glory by Lady Gaga
    band Green Day
    music genre Pop!!
    country I love America, but I've always wanted to go to England
    state I like Pennsylvania, its nice 
    city I love New York City, Chicago, and San Fransisco 
    channel Anything that isn't the news
    color Mint Green 
    dog I really want a Puggle, Pug or Pomeranian 
    cat https://encrypted-tbn1.gstatic.com/images?q=tbn:ANd9GcTczn3l8t0MNhi_chMIm1rHhClEEJJt6LEZnVcqtlTjLVJ6n9T_ 
    Need I say more?
    car Vintage cars 
    hair product Curling Iron
    shampoo Drama Clean by Herbal Essences
    conditoner My hair's oily so none
    body wash My friend Emily makes amazing moisturizing bars
    perfume My mom is allergic, so no perfume for me, I love Wonderstruck though
    item of clothing The Mint Green Dress I wore in San Fran
    store Forever 21 girls or Justice 
    food probably Macaroni and Cheese... 
    restraunt Old Country Buffet 
    quote from a movie "Dear Mr. Vernon, we accept the fact that we had to sacrifice a whole Saturday in detention for whatever it was we did wrong. What we did WAS wrong, but we think you're crazy to make us write an essay telling you who we think we are. You see us as you want to see us... In the simplest terms and the most convenient definitions. But what we found out is that each one of us is ... a brain...
    Andrew Clark: ...and an athlete...
    Allison Reynolds: ...and a basket case...
    Claire Standish: ...a princess...
    John Bender: ...and a criminal...
    Brian Johnson: Does that answer your question?
    Sincerely yours, the Breakfast Club." Obviously, its from the Breakfast club
    magazine Seventeen! 
    holiday Christmas or Fourth of July
    season Summer
    accent British
    height I don't judge
    weight enough to keep you alive
    body part eyes
    color of eyes Brown
    color of hair  Black
    color of skin Racist....
    commercial http://www.youtube.com/watch?v=A3IV22FJIbc
    tv show Probably Glee or Switched at Birth 
    youtube video http://www.youtube.com/watch?v=rzxzho63csU
    ringtone Gotta Get Back To Hogwarts 
    place to eat (like at a park, home, etc) Where ever my family is

Wednesday, April 10, 2013

Pictures

My memory card decided to not let me upload my pictures and then deleted all pictures, so I'll show you some of my moms pictures :)
Alcatraz from a distance

Melissa and I, when I met her

Cable Cars

The Golden Gate Bridge :)

Me, Justin (Bright Blue Shirt) Kianna (Stripes) a doctor and the scientist who invented the Enzyme :)
Me Zane and Luke :)

I can't see why they're so out of order

Fisherman's Wharf/ Pier 39

There were people surfing under the golden gate bridge, I thought it  was cool, but my mom was nervous because it was extremely rocky

The Band made up of the World's Tallest Man (See? He cracked the ceiling),  a two headed cow and I'm  not sure who the lady is

This lady made a Lobster out of Sourdough Bread
And then brought us a sourdough turtle! 

Other breads in the shop

Me and Lori outside of Wrigley's believe it or not :)

Caricature :) 


The ever adorable Sea Lions

Oooo Alcatraz!!!
Look where we ate dinner :)

I'm a huge fan of the Forrest Gump movie, so  I had to have a picture with the Jenny


How my kids meal came


Watching the Sea Lions 

The First Night

Watching the Surfers!

Top: Ray
Middle: Jenn, Lori
Bottom:  Me

Keep Your Head Up!

Hey everyone, it's Wednesday and I am uber bored. So I decided to take an idea from Kianna, write about something that inspires me. My current favorite song is Keep Your Head Up by Andy Grammer. "Only rainbows, after rain, the sun will shine, shine again." I love the line "You gotta keep your head up, Oh and you can let your hair down Ay" So here is a link to said song Song here! That song helped me today, we forgot my numbing cream at home, so I had to be accessed without numbing cream. I was upset and the line "I know its hard, know its hard to remember sometimes, but you gotta keep your head up. That's how I feel about life, I can always mope about my life or live it to the fullest,  I exercise and stay healthy so that I can be as healthy as possible, and do what I want to do.




I've been waiting on the sunset
Bills on my mindset
I can't deny That they're gettin high
Higher than my income
In comes breadcrumbs
I've been trying to survive

The glow that the sun gives
Right around sunset
Helps me realize
This is just a journey
Drop your worries
You are gonna turn out fine.
Oh, you'll turn out fine.
Fine, oh, you'll turn out fine.

But you gotta keep your head up, oh,
And you can let your hair down, eh.
you gotta keep your head up, oh,
And you can let your hair down, eh.

I know it's hard, know its hard,
To remember sometimes,
But you gotta keep your head up, oh,
And you can let your hair down, eh.

I've got my hands in my pockets,
Kickin these rocks.
Its kinda hard to watch this life go by.
I'm buyin into skeptics,
Skeptics mess with, the confidence in my eyes

I'm seeing all the angles, starts to get tangled
I start to comprimise
My life and the purpose.
Is it all worth it,
Am I gonna turn out fine?

Oh, you'll turn out fine.
Fine, oh, you'll turn out fine.

But you gotta keep your head up, oh,
And you can let your hair down, eh.
you gotta keep your head up, oh,
And you can let your hair down, eh.

I know it's hard, know its hard,
To remember sometimes,
But you gotta keep your head up, oh,
And you can let your hair down, eh.

Only rainbows after rain
The sun will always come again.
And its a circle, circling,
Around again, it comes around again.

Only rainbows after rain
The sun will always come again.
And its a circle, circling,
Around again, it comes around,

But you gotta keep your head up, oh,
And you can let your hair down, eh.
you gotta keep your head up, oh,
And you can let your hair down, eh.

I know it's hard, know its hard
To remember sometimes,
But you gotta keep your head up, oh,
And you can let your hair down, eh.

Keep your head up, oh,
And you can let your hair down, eh.
Keep your head up, oh,
And you can let your hair down, eh.
Keep your head up, oh,
And you can let your hair down.

Thank you for reading. 
With Love,

Sarah 

Tuesday, April 9, 2013

Welcome :)

Hi! I am Sarah Anne Van Orden, I have Morquio A and I want to live my life to the fullest! My friend Kianna (her blog is: http://kiannasmoments.blogspot.com/ ) from Arizona. Has inspired me to make a blog, I've tried to do everyday blogging, but her style is more me, a post every once in awhile,  thanks Kianna for the inspiration!

So I was diagnosed with Morquio when I was 2 1/2 years old, it a disease that causes me to be shorter but no different from anyone else, as a part of this disease I have short limbs, a short torso, a flared out chest and lax joints. I had my first surgery at age 4, had 2 on my neck, 2 on my hips, 3 on my knees, 2 on my ankles, and a Metaport insertion.

This weekend I went to San Francisco and met a bunch of other people with Morquio.