Hi! I am Sarah Anne Van Orden, I have Morquio A and I want to live my life to the fullest! My friend Kianna (her blog is: http://kiannasmoments.blogspot.com/ ) from Arizona. Has inspired me to make a blog, I've tried to do everyday blogging, but her style is more me, a post every once in awhile, thanks Kianna for the inspiration!
So I was diagnosed with Morquio when I was 2 1/2 years old, it a disease that causes me to be shorter but no different from anyone else, as a part of this disease I have short limbs, a short torso, a flared out chest and lax joints. I had my first surgery at age 4, had 2 on my neck, 2 on my hips, 3 on my knees, 2 on my ankles, and a Metaport insertion.
This weekend I went to San Francisco and met a bunch of other people with Morquio.
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