So its been a full month but I just discovered a picture my friend Kianna's mom took of us while I was in San Francisco, so I thought I'd share my experience during that weekend.
 |
| This is the picture, aren't we adorable Ladies and Gents? |
So, on Saturday April 6th my mom and I arrived at HIA (Harrisburg International Airport, which is only international because one gate has flights to Canada, so another road block for my dream trip to England) at about 5:30 am!! We got on our first flight to O'Hare Airport in Chicago. I hate O'Hare with a passion because when I was 11 years old, I flew out there for a week the week after my birthday. So it was my second flight, the lady took me away from my mom and pat me down without telling me what she was doing, I was scared and cried. So that was a 2 hour flight, then we got into Chicago, got our breakfast and took off for San Francisco, that was a 5 hour flight!! So overall I was in the air for about 7 hours!! And I was only there for a weekend! So we got to San Francisco and headed straight for the Omni, got some lunch and got ready for the first night! I wore a fabulous striped peplum dress from JCPenny's, with crochet fake TOMs (c) (Foms, if you will) from Kohls. I met a bunch of friends, including Kianna, who is basically me, but she doesn't like Harry Potter, and she loves Justin Bieber (ICK! :P ) but she's still cool! We went out for dinner to this restaurant called Buca De Peppi, apparently there is one 30 minutes from my house here in Pennsylvania, but I had never been there, my mom and I left along with other people to go back early, it was Midnight (EST) when Dinner was served! I almost fell asleep and I didn't eat I was so tired, I showered and went to bed in one of the softest bed I have ever slept in.
 |
| A side view of my outfit, with the scientist who developed it, another rep from BioMarin, Justin and Kianna (who is texting)
Day 2: I slept in until 6 (It was 9 my home time) and was on the computer for a bit, before getting ready for breakfast at 7:30, I wore a wonderful Mint Green Dress from Forever 21 with the crochet Foms again!
|
|
| The Dress, I was never seen without my Camera the whole weekend |
So we had breakfast and were broken off by age Teens, Adults with MPS VI, and parents of people with Morquio, I sat next to Kianna, we had become friends very fast, just talking over dinner and stuff. They asked us "What do you like to do?" I talked about my love of writing, reading, photography, listening to music and shopping. "How to people treat you?" I told them the truth. "How's the study treating you?" I said its awesome and I bragged about the breathing and stamina and my eyes. "What do you do during treatment?" I play on Facebook, Tumblr, read, do homework. "What are the side effects you experienced?" Fevers. Then we broke off into country, I sat next to Kianna, and the adults kept coming up with Ideas that I already had. So I was talking to Kianna, then we said goodbye, I hope I get to see everyone again! And then we were all together and this guy told us the RIGHT way to tell our story. Then we went to our hotel room, I got into my favorite Owl Shirt from Kohl's, a hot pink cami from Justice and Capri's from Old Navy,with a fuzzy purple sweatshirt from Kohl's and my fake TOMS, we met our family and went out. We went to Lombard Street, The Golden Gate Bridge, and Fisherman's Warf, it was a lot to see in one day, but it was so much fun!! I had a fabulous time!
 |
| My outfit for touring |
No comments:
Post a Comment