Dear readers,
So This morning I was talking to my friend Zoe, and I said I wish I could be on the Ellen show, so we came up with an idea, I am going to get a facebook page to 5,000 likes. https://www.facebook.com/GetSarahVanOrdenOnEllen (This one right here!) So I thought I'd share my actual story. I was born on June 6th 1997, and at age 2, I got diagnosed with mucopolysaccharidosis IV A or Morquio. My first surgery occurred when I was four years old I was almost paralyzed for life after that surgery. When I was six I had my second surgery, that straightened my knees. When I was seven I had surgery to give me hip sockets and ankles. At age 8 I had yet another knee surgery with ankles attached, then nine I had another knee surgery, eleven I had a surgery to repair my neck because I tripped over a pebble and that dislocated my cervical spine. I almost died during that surgery, my doctor accidentally screwed a screw in a major artery in my neck. When he unscrewed it, I internally bled, and I almost died. But I made a full recovery, then I had a minor knee surgery and my ankles and hips. Then at age 14, my miracle drug came along it was an infusion and it replaced the Enzyme that I am lacking. Since getting my Enzyme, I have gotten 92% percent better breathing, I also had a port placed. And ever since my second to most recent surgery, Ellen has helped me through everything. I want to go on the show to personally thank her. So if you are over 18, can you please fill out this form for me?http://www.ellentv.com/be-on-the-show/399/ or this one:http://www.ellentv.com/be-on-the-show/10/ Thank you, Love, Sarah Van Orden, 16
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